FOUNDER & LEAD

Kyle is committed to building a user-friendly platform to help researchers share clear, accessible, and accurate medical and scientific information with rare disease patient communities.

EPIDERMOLYSIS BULLOSA MEDICAL OUTREACH DIRECTOR

Kimiya is a medical student at Stanford University highly interested in Dermatology and currently leads our BE rare dermatologic disease team. She was born and raised in Los Angeles and graduated from UCLA studying Psychobiology and Disability Studies.

MEDICAL OUTREACH DIRECTOR

Miriam is a Zo, Chin refugee from Myanmar and an aspiring physician dedicated to advancing health equity and expanding educational access for underserved communities. A Posse Scholar and Trinity College graduate, she served as a medical scribe in ophthalmology and was a health fellow researcher studying healthcare disparities at Hartford Hospital.

MEDICAL OUTREACH DIRECTOR

Daniel is a rising 3rd year medical student at West Virginia School of Osteopathic Medicine. He intends to pursue a career in Pathology.

CHARGE SYNDROME MEDICAL OUTREACH DIRECTOR

Priyanka is a current medical student at Stanford Medical School. She graduated from Stanford University in 2022 with a B.S. and M.S. in Electrical Engineering. Priyanka is passionate about rare disease advocacy and aspires to bridge medicine and engineering to advance healthcare literacy and improve patient quality of life.